Information about Long QT Syndrome  
Navigation
Homepage
For Patients
Intro to LQTS
Drugs to Avoid
Print Materials
Online Resources
LQTS in the News
For Physicians
General LQTS Info
Recognizing LQTS
Proper EKG Analysis
Patient Treatment
Bibliography
Additional Info
Our Mission
News Archive
Search
Contact Us

Since 2002

 

Last Update: Nov. 29, 2008

 

"He heals the brokenhearted and binds up their wounds."

—Psalm 147:3

Current News
Congenital Long QT Syndrome: Considerations for Physicians
Posted by Mark
Nov 29, 2008
I would like to share with everyone a recent, and well written, review recently published through the Cleveland Clinic. I believe many readers, especially physicians, will find it interesting and informative.

The article highlights the new possibilities in Long QT Syndrome management with the advent of genotyping. There are now 10 identified Long QT Syndrome genotypes, up 6 from just a few years ago! I definately recommend this article, as it is an excellent review of current research and management in Long QT Syndrome.

Cleveland Clinic Journal of Medicine (Free to Public): Click here for complete article.


Sudden Cardiac Death During Adolescence in Long QT Syndrome
Posted by Mark
The results of the largest-to-date follow-up study of Long QT Syndrome patients hit the pages of the Journal of the American Medical Association. The study followed 2772 participants from the International Long QT Syndrome Registry who were alive at 10 years of age and were followed up during adolescence until age 20.

Highlights of the study:
  • Three key predictors of risk for cardiac arrest and sudden death in Long QT Syndrome patients include: Timing and frequency of syncope (fainting), QTc prolongation (read by physicians on an EKG), and gender.
  • Among individuals with syncope (fainting) in the past 2 years, beta-blocker therapy was associated with a 64% reduced risk.
  • Young males (age 10-12 yr.) may have 4 times the risk of cardiac events related to LQTS, compared to females, but from age 13-20 years both males and females had relatively equal risks.

  • JAMA synopsis of the article (free to public): Click here.


    YWCA Welcomes Long QT Expert to Annual Leader's Luncheon
    Posted by Mark
    Dr. Michael Ackerman, Associate Professor of Medicine, Pediatrics and Molecular Pharmacology at Mayo Clinic College of Medicine and expert in Sudden Death Syndrome, will address the YWCA Elgin’s 25th Annual Leader Luncheon on May 8th at The Seville in Streamwood.

    Reservations are being accepted at the YWCA, 847-742-7930, or log on to YWCAelgin.org.


    View Previous News Articles


    A Bit about Long-QT-Syndrome.com

    Mark during his diagnosis with long QT syndrome.
    Mark and his Electrophysiologist.
    ___ Long-QT-Syndrome.com was started in the fall of 2002 by Mark, a long QT syndrome patient, in hopes of supporting families and educating professionals within the medical community about long QT syndrome. Since that time, Long-QT-Syndrome.com has helped to educate and support numerous patients and families affected by long QT syndrome. In 2007 alone, over 10,000 people used our Web site as a resource for learning about long QT syndrome.

    ___ At present, our plans for expansion are centered on adding in a frequently asked quetions (F.A.Q.) page and addiational printable long QT syndrome brochures for both patients and physicians.

    ___ The physician information section of our site is intended for medical professionals, but patients may also find it a useful resource in learning more detailed information about long QT.

    Thank you for taking the time to learn more about long QT syndrome. If you have any comments, questions, or are looking for support, please let me know. I am more than happy to help,

    Mark
    Long-QT-Syndrome.com Founder
    Mark@Long-QT-Syndrome.com
    Long QT Syndrome

    ___ The contents of the Long-QT-Syndrome.com Site, such as text, graphics, images and all other material contained on Long-QT-Syndrome.com are for informational purposes only. The contents were not written by a practicing medical doctor/physician and may not be correct. The content within Long-QT-Syndrome.com is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on the Long-QT-Syndrome.com Site!

    Created and copyrighted 2002 - 2008 by Long-QT-Syndrome.com

    Happy hearts lead happy lives.