|
|
|
|
|
Long QT Advisory
Long-QT-Syndrome.com advisories feature important health related news that should be reviewed by people who have long QT syndrome.
The following message is authored by Dr. Silvia G. Priori (MD,PhD) from the University of Pavia, Italy. It addresses the book: "Long QT Heart Syndrome, the Cause and the Cure" which is currently available online and being published throughout the United States and Australia.
___ A booklet entitled "Long QT Heart Syndrome - The cause and The Cure " has come to my attention and it is with major concern that I feel the obligation to warn patients about the medical nonsense of the content of this booklet that provides misleading messages that, if followed, may be fatal to Long QT syndrome (LQTS) patients.
___ The author talks about Long QT symptoms in term of a "racing heart" in response to nerve activity triggered by frustration and by incorrect body posture. He fails to recognized that long QT syndrome patients do not have a "fast heart beat" but they have major arrhythmias and cardiac arrest because their heart is intrinsically abnormal. A disease like long QT syndrome cannot be cured by diet, behavioral control and posture control.
___ I do not want to disregard the potential contribution of control of emotions, avoidance of frustration, and behavioral therapy in the management of LQTS, but I need to warn patients that long QT syndrome requires evaluation and treatment by a cardiologist who is an expert in the management of patients affected by the disease and who have seen more than "three likely cases" as stated by Mr. Battern. A behavioral approach may be considered as a potentially useful support in selected individuals in addition to the appropriate medical treatment.
___ I do hope that Mr. Battern will realize the tremendous responsibility he is taking trying to disseminate false interpretation concerning a potentially lethal disease. In the absence of scientific data, based on the observation of few cases with uncertain LQTS diagnosis, Mr. Battern and his association, Energetic Solutions, are circulating misleading information to patients and families that if discouraged to trust their cardiologists, may face a severe risk of death. If even a single patient would discontinue effective medications (beta blockers) or will refuse an implantable defibrillator considered necessary by a cardiologist, to follow the irresponsible message of Mr. Battern, he should be regarded as responsible for the potentially major consequences to the health and well being of that individual.
Silvia G. Priori (MD,PhD)
University of Pavia
|
The contents of the Long-QT-Syndrome.com Site, such as text, graphics, images and all other material contained on Long-QT-Syndrome.com are for informational purposes only. The contents were not written by a practicing medical doctor/physician and may not be correct. The content within Long-QT-Syndrome.com is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on the Long-QT-Syndrome.com Site!
Created and copyrighted in 2004 by Long-QT-Syndrome.com
|
|
