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Recommended Links for LQTS Information
Last Updated: October 21, 2004
This section contains links to other websites that provide quality, reputable information about long QT syndrome. Please take the time to visit each of the websites below. If you know of a great long QT syndrome website that we do not have listed here, please contact us and we will review the site for addition into this section.
- Online LQTS Support Groups
- QTsyndrome.ch Message Board
http://www.qtsyndrome.ch/discus/messages/board-topics.html#MT
- One of the two best LQTS discussion boards on the internet. If you are looking either for support, other people's experiences, or have general questions about long QT syndrome, please check out this online discussion forum.
- The Long QT Support Group
http://health.groups.yahoo.com/group/longqt
- Generally regarded as the best e-mail support group for people with long QT syndrome. If you would like to get in contact with a strong, worldwide support group composed of people who have long QT syndrome, please check out this Yahoo Support Group.
- General LQTS Information and Support Links
- Sudden Arrhythmia Death Syndromes Foundation
http://www.sads.org.au (Australia)
http://www.sads.ca (Canada)
http://www.sadsuk.org (United Kingdom)
http://www.sads.org (United States)
- The Sudden Arrhythmia Death Syndromes (SADS) Foundation was established in 1991 by G. Michael Vincent, M.D. and several dedicated co-founders. Their mission is to save the lives of children and young adults who are genetically predisposed or otherwise susceptible to sudden death due to cardiac arrhythmias. They provide education and support to families and members of the medical community. Detailed information on a wide range of cardiovascular diseases associated with sudden death, including long qt syndrome, is available on their websites.
- QTsyndrome.ch - About QT Syndrome
http://www.qtsyndrome.ch
- QTsyndrome.ch provides a wide range of information about long QT syndrome to patients. Their website includes an FAQ, the history of LQTS, a drugs to avoid section, and links to other helpful LQTS resources.
- The Mayo Long QT Clinic
http://www.mayoclinic.org/longqt-rst/
- The Mayo Long QT Clinic, located in Rochester, Minnesota, specializes in caring for individuals with Long QT Syndrome. Headed by Dr. Michael Ackerman, it is one of the most well known Long QT clinics in the world. Aside from treating patients, Mayo's Long QT Clinic also conducts research on the genetic mechanisms underlying Long QT. The clinic's website has an excellent information section dealing with some of the specifics of Long QT.
- Cardiac Arrhythmias Research and Education
http://www.longqt.org
- The Cardiac Arrhythmias Research and Education (CARE) Foundation was founded in 1995 by a group of electrophysiologists and individuals touched by the trauma of sudden cardiac death. Today their mission is to provide funding for medical research and increase medical and public awareness of the unexpected death of children and young adults due to inherited heart rhythm disorders.
- QTDrugs.org
http://www.qtdrugs.org
- QTDrugs.org is devoted to education and research on drug-induced arrhythmias, especially those due to prolongation of the
QT interval on the electrocardiogram (ECG). An up-to-date list of drugs suspected in elongating the QT interval is available on their website. The drugs on their "QT Drugs List" are generally not recommended for usage by people who have or are suspected of having long QT syndrome.
- National Center for Early Defibrillation
http://www.early-defib.org
- The National Center for Early Defibrillation is a non-profit resource center based at the University of Pittsburgh. Their mission is to promote the immediate use of defibrillation for victims of sudden cardiac arrest by educating the public about the importance of early defibrillation. Their website includes detailed information about the significance of early defibrillation and how defibrillators work to save the lives of people who experience cardiac arrest. It also gives contact information for several national organizations that offer AED training classes.
___ The contents of the Long-QT-Syndrome.com Site, such as text, graphics, images and all other material contained on Long-QT-Syndrome.com are for informational purposes only. The contents were not written by a practicing medical doctor/physician and may not be correct. The content within Long-QT-Syndrome.com is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on the Long-QT-Syndrome.com Site!
Created and copyrighted in 2004 by Long-QT-Syndrome.com
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